Intervenciones psicológicas cognitivo-conductuales en padres de niños con hemofilia hospitalizados en Guayaquil : afrontamiento, bienestar emocional y adherencia familiar al tratamiento.

Abstract

This thesis presents a proposal for psychological Intervention aimed at parents of children between the ages of 8 and 10 who suffer from hemophilia and are undergoing hospital treatment in Guayaquil. The objective of the research is to analyze the psychological intervention methods based on Cognitive Behavioral Therapy aimed at parents of children aged 8 to 10 diagnosed with hemophilia and undergoing hospital treatment in the city of Guayaquil. Its justification is based on the high mental burden and the psycho-emotional impact of a diagnosis of hemophilia. The proposal is embodied through CBT as a mechanism for restructuring distorted thoughts, seeking to strengthen resilience and encourage adherence to treatment. The research methodology has a qualitative approach, using semi-structured interviews to collect the experiences and perceptions of parents regarding hemophilia and hospitalization. The results obtained confirm that cognitive hypervigilance in parents is constantly present and alters their role as active caregivers. Based on these results, a CBT intervention program was designed with modules that include psychoeducation, assertive communication, and emotional regulation. It was concluded that strengthening the tools used by parents improves their emotional stability, ensuring a dignified and autonomous life for the child. It is recommended that psychological support be provided to parents in order to offer psycho-emotional support throughout this hospital process.